Remicade

Suffering from ulcerative colitis for many years I thought that my life is doomed and that I will never live a life without pains and sufferings. I was having thoughts that there’s nothing in this world that would ever help me treat it and not to feel the pain. Eventually, these pains were a part of me already. The first time when I got the feeling of a life without pains I could not understand what is this and I was paranoid that I am still having pains even though they disappeared. The best way to describe this drug is life changing medication. Remicade has changed my life, has changed me. I have been on it for about 3 years now and since then I’m feeling again like a normal human again, without constant pains, without daily sufferings. Now, after being years on this medication, the disease has become an extremely small part of my life, it is almost not there at all. There was a time when I could not think anything else than this but now I am rarely remembering about it especially comparing to how it used to be. However, it seems that I am slowly slowly losing the good response to this drug as I had to increase the frequency of the infusions once. Moreover, lately I am getting occasionally some minor symptoms around that time when I’m scheduled for the next dose. Sincerely, I was a little bit concerned when I just started to use this drug due to the nervous trips to my local hospital for these infusions and because of another reason: initially, the doctor was talking about it like it was a huge deal and with huge risks. However, now, I have only one thing to say: I would wish that I started to use remicade way sooner and not to waste those years in my life.

Hi. I am a 30 years old African American female who has been diagnosed with an autoimmune disease that it is called sarcoidosis about 4 and a half years ago. It’s been a long run since then but before I was ever diagnosed with that sarcoidosis autoimmune disease I was already being diagnosed with chronic Uveitis and both of my eyes. The doctor who was treating me put me on several different amuse suppression meds along with an oral steroid that was called Prednisone. I took it for a couple of weeks but then it left me with nothing else but extremely bad side effects so I needed to discontinue taking about a little more than a months ago. After that and after a lot of failures my rheumatologist doctor put me on this medication called Remicade and he has also raised my dosage of the Methotrexate medication. My condition was extremely bad (the doctor said that I’m his patient with the worst condition he has ever had) so that’s why he put me on the maximum dose of this med (he said that if needed we would lower the dosage) so we started to notice the progress and the changes. Trust me, this is the best medication I have ever had since I am diagnosed. I have only had 2 infusions of this medication and I can already see a big difference. I am wondering how the progress would go further but as for now, I am extremely happy with it. The side effects with this one are very minimal which is also another good thing. before that I thought that this is going to end pretty bad but now I finally have big hopes. Oh yeah, i am pretty lucky too because I have received the Remicade infusions completely free through a donation. Thanks to my doctor and thanks to the donators.

my son is taking remicade for nearly 2 years now, he was only 13 years old. Doctor diagnosed him with crohn’s disease at 12 years as he was having and still has severe chron’s flare ups. Before I gave him remicade he was on others medications too (such as lialda) so remicade was our last option besides from having a surgery. The doctor said that our son would have headaches, tiredness and he is up to get sick easier than usual. The doctor explained that these are the common side effects from remicade. However, the treatment gave him some side effects but not these ones. He never complained about frequent or severe headaches, he never complained about being “very” or unusual tired and while all his family members (including me, his sister and his mother) were sick with flu, he wasn’t. when we started the treatment the docs didn’t gave him a big amount of remicade but as the effects were very little they started to raise constantly the dosage. Anyway, when it was a pretty high dose of remicade, my son was still getting those flare ups every month. We’ve noticed that it really helps right after he had the infusions but then the effects disappear. 2 months ago he had his last dose. That’s because doctors have tested his blood and they noticed that he’s building antibodies to this medicine and this means that Remicade won’t work for my son. This explains why he had effects only after he had the infusions and that’s all. Now, he’s almost 15 years old but I’m already thinking about a surgery for him. I really wish not doing it but I’m ready to do everything so he can feel better once and forever. I guess it would be a nice medication if my son’s body won’t build antibodies to it.

My rheumatoid arthritis was getting unbearable the last few years and my doc mentioned few drugs that should work for my condition. I went home and read a little bit about all of them and in the end I’ve chosen remicade. I don’t regret! It’s a very good drug! Until now I’ve had 12 infusions and initially I’ve started out with 200 mg and it was every 8 weeks (2 months). I was already able to feel some relief for a lot of my symptoms (including the worst pain and stiffness) but I was still suffering from them. Even though I was feeling a lot better than ever before it wasn’t treated completely so there was still a lot remaining. I was already very happy that the pains and stiffness lessened and being afraid of side effects I didn’t wanted to raise the dose but thanks to my wife who insisted to raise it, we’ve did it! The doc increased the dosage to 400 mg and it worked very good. the pains and stiffness are almost completely gone! I am still getting some of them here and there but now it is nothing to what I’ve used to have before. I’m so happy that I’ve chosen this drug! Overall I’m feeling a lucky man for this doc, for my doc and for this drug. I don’t know how it is going to be in few years more but I really hope it won’t lose its effectiveness! Moreover, I haven’t noticed no bad side effects until now! I really hope that everything stays exactly in this way! For me the drug is very effective with no side effects. What else better could I get?

Good day everyone! I don’t take remicade but I’m here because my daughter does and I wanted to let you know how it works on her. She is only 15 years old and she was diagnosed with chronic bilateral anterior uveitis 2 years ago in February. Later doctors told us that she’s developing secondary glaucoma due to corticosteroids. Her father and I decided and she has had 2 trabs in her right eye and only one trab in her left eye. Before we ever gave her remicade we started with methotrexate, but that drug wasn’t working well, so we decided to switch her drug and later doctors said that it would be the best to put her on remicade. Things were going just great for almost one year with no troubles at all. Obviously, I’ve tried to reduce the dose since her situation was getting better and better but as soon as the doctor slightly reduced the dose, her inflammation was back within 3 weeks so... Obviously, the doctors had to up her dose back again and she is still taking now remicade every 4 weeks the same dose as initially. These medicines are stabilizing her situation and I’m truly thankful to this, I’m very glad that this at least works and she’s feeling better but the point is that they cannot put her into remission and this isn’t a good thing since that's what we are striving for in months. I would try another medication but I’m afraid that her situation is only going to get worse.

I’m 64 years old man who has a treatment with Remicade and methotextrate. I had very good results with this treatment and it was very easy. Anyhow, this stopped as soon as I was feeling flu-ish for few days and then having extreme short of breath. Went to my doc who later confirmed that I have fibrosis on my lungs. On both of them. I never stopped taking remicade but methotextrate was discontinued. Now this doc said that I should continue to take both of them. Don’t know what to do because I don’t know what drug caused the fibrosis. Any hints?

I am now taking Remicade for a little more than 3 years and I am glad to say that this drug is a life savior thing. My previous life that I thought I will never have it back was brought to me by this product, so my second life full of pains and suffering came to end as soon as I first took Remicade! I’m honestly thankful to whoever developed this drug! After many years of suffering and struggling of Ulcerative Colitis and many other products taken, Remicade turned out to be the best thing for me. Since I take this drug, my disease is rather unseen and unnoticed. It became such a small part of my life that I rarely think of it as a disease all thanks to Remicade. I have minor to no side effects at all and this is also a God gift brought to me. Nowadays, I rarely have some minor symptoms around the time I am scheduled for the next dose and no more. Moreover, this is not happening all the time. After lots of tryings, money and time waste I was really concerned that this thing also won’t work on me. It works so good that I’m ready to accept other side effects if they are going to appear (so far I mentioned that I had almost no side effects). My life has dramatically changed due to this drug and I recommend it to whoever has problems as I did. Trust me I’m not selling this drug and I’m not trying to do it. I really don’t care if it’s going to be sold, I just came here hoping to help others suffering with disease like mine because I know how hard it can be.