Father’s Parkinson disease, please help

drann

New member

Please people help me, I don’t know what to do and how to deal with all this…I’m just 15 years old, and I know very well that I’m a little bit sensitive to all the things that happen to me in my life but now I really have a problem… Actually the problem is linked with my father and I really would like to clarify some things… Recently I found out that he was diagnosed with Parkinson disease.. I didn’t expect that some disease could be so heartbreaking to me but this happened… The thing is that my dad is the only person in my life.. I never knew my mother because she died when I was 3 months old and during my entire life I saw just some pics of her. My dad is everything to me and when I found out about the disease I suddenly started to feel so bad and scared.. Scared not to be alone for my entire life. My dad was always a superhero for me and now I still can’t believe that he is so depressed now and that he is always tired. Before the disease I always could talk about all the problems that I have had, now I feel that I would like to help him with something but I can’t, it’s like he don’t want to talk with me about anything.. This is not the only problem that we have.. the second one is more serious.. I always thought that even if I can’t help then the doctors the neurologists would have to do this, but our neurologist seem not to care about my father’s health, every time we go to visit him, he seem to be very passive and none interested, like my father did not have the Parkinson but a simple cold or something like that.. All the time I talked with our neurologist he always told us that we have to get use with this problem and to start to treat this like a part of my father’s life… I know that in some words he is right but actually I don’t want to think about this like a problem that will persist all his entire life.. this is really difficult to afford and to accept and I think that it’s difficult to my father too, I’m sure about it. I have seen his face when he heard this and I understood that he started to feel so bad about this.

 

Of course our neurologist prescribed him a medication but talking seriously since the beginning I understood that this wouldn’t help my father and it didn’t.. I knew that we have to change it. After some months of using this drug we decided to talk with our doctor and to change it. He seemed to be very astonished about the entire situation and about my explanations, like he didn’t expected that the drug wouldn’t work for whatever the reason. The only thing that we expected that day was that our doctor will change the drug and soon my father will start to feel at least a little bit better. Unfortunately not… the only thing that he did was to increase the dosage of the drug.. I felt very disappointed and I can imagine what my father thought about this. I consider that most of the time he feel so depressed because he consider that nobody can help him to pass over this disease. The double dosage that our neurologist recommended to my dad was a very drastic one.  2 weeks after he started to use the double dosage I observed that he started to feel very bad, awful and he couldn’t walk anymore.. I’m very sorry that I forgot the name of the drug I really hope that soon I am going to remember the name and I’ll write it to you.  He had told all of this to the neurologist, and he explained all the symptoms to him, but again after he heard all the explanations he told us to get used to it.. to get on with it because it will be forever like this…

 

How could he tell something like this.. how? We haven’t seen our neurologist for 2 months and during this time many things changed. My father started to feel worse and this is liked with different other health problems.  He can’t sleep normally during the night he just wakes up during the night and just walk around our house.. this scares me so much and even though I want to help him so much it seems that I can’t, but it’s obvious… only with talk we won’t help somebody and won’t cure anything.. but what else I can? Some days ago when I was talking with him I notice that he started to notice some things that were linked with suicide problems…  He is literally falling apart and the worst thing is that I can’t help him. I’m here because I’m desperate.. some time ago when I have had a problem I talked about this with my father, now that he’s sick  I can’t talk with him about anything and I really need to talk with somebody. I need some help, some recommendations and comments. If there is somebody that have experienced the same things or that have parents, friends, relatives that experience the same thing please, I’m begging you to help me at least with the very little you have. I have to do something for him, to help him, to do at least something to make him feel better, he’s the most precious person in my life… HELP!

 

HolyHolly

New member

Hello dear, I’m 36 years old and my dad is suffering from the same situation so I can understand your sufferings.. though, I think that your situation is a little worse, unfortunately! I can’t imagine how is it to pass over such a thing when you are just 15 years old… I wish I could say something helpful in order to encourage you, but this is too hard. I know what you feel when you can’t do anything for him, and I feel so sorry for you that you have to pass over this problem alone without any relatives. This disease is a very bad one, a disease that make you feel hopeless and in this situation you can’t believe that something can be good. I can say this because I have passed and I pass through this now .. my father feel bad and I know and I accepted that the only thing that I can do for him is to love him, to support him and to talk with him all the time. I know it’s difficult to understand him in this situations and I know that when he speaks with you you’re afraid, but you have to be strong for him. You said that he always was your hero, now it’s your turn to become a hero for him. You did a very good choice when you decided to write here, I think that you’ll find a lot of support from different people ,so we are always here to help you. I consider that in this situation, you are the one that need more support and encouragement. Be strong, everything will be okay.

 

Wasoness

New member

Oh my God.. you have to search for another neurologist as soon as it is possible, until it’s not too late… My mom have had Parkinson disease and the only thing that I can say for sure now is that having a good neurologist is one of the most important things for your father now. This disease is one of those that should be controlled by a specialist, and I mean a specialist not a ignorist. I can’t believe that your neurologist could take it so easy and without problems.. this was so rude. I don’t know how could you endure all the words that he told you and to your father. Girl, don’t wait till this will become an insupportable thing, sooner or later you are going to need to speak with a doctor but with a good doctor. This forum is really amazing, and the other user is right if you need some support we are here to support but it’s the only thing that we can do, unfortunately we cannot do anything else... I think that the first thing to do is to talk about this with your family doctor, I’m pretty sure that he can recommend you one good neurologist that will help your doctor. Believe me, go and seek for one because ignorance would definitely will make it all worse.

 

drann

New member

Oh, thanks for your support, I’m glad that I could find here some people that understands me and that can advise me something. Moreover, I think that you’re right and that we need to search for another specialist. Talking about our family doctor this is not the situation to ask him about a new neurologist because the previous one was the one recommended by our family doctor saying that he knows his job and that he will help. I think that I am going to try to ask my friends if they have a good neurologist or to search in internet were to find one. Anyway thank you for all you answers and I will wait for other answers, I’m really glad that I found this forum, and now that I know that I’m not the only person that passed over this situation I can say that I feel better, and I don’t feel so alone anymore! Thank you once again for everything.

 
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