Dadmagicip
New member
Hey everyone. 5 months ago I just have had a surgery and I open the carpal tunnel on my both hands. Before this my diagnosis was confirmed by my doctor and by the nerve conduction study. As I understood from all the explanations, I have developed it because of a past traumatic event and the syndrome was called the post traumatic syndrome, because of the past events I have had.
At the beginning when I found out about this syndrome I’m suffering from, the entire problem resumed to the fact that I have had this thing just on one hand, after approximately a month I found out that actually the second hand suffers too. When I found out that I have this syndrome and the first time when it was just in one hand I didn’t felt any strange symptoms that usually people feel when they have this disease. All the symptoms started when I found out about the second hand and I don’t know if this is due to the psychological factor or not but I noticed very well that this happened after I found out about my second hand. I felt some strange symptoms and I knew that they weren’t the same because my doctor have told me about this in past when we found out about the disease. Anyway I have spoken about this with my surgeon and I explained that I feel a strange sensation of tenderness and this is not usual to me. He asked me to tell more about the symptoms that I have and I decided to explain him every single thing that I know and I experience. At the beginning I noticed that he was confused about this situation but later, after this, after I explained more detailed all the situation and all the symptoms he suddenly understood what am I talking about. As I remember he explained that the thing that I experienced is called “pillar pain” that as he told happens quite occasionally to the patients. I was expected that he will recommend me to take some drugs or to use a special cream that can help me but not, the only thing that he suggested was to massage my hands and to do some exercises, he suggested to massage the incision very well because as he said it’s very important and can help to elevate the pain. It was very strange to hear such a thing and since the beginning I understood that it will be better to search for something else because I hardly believed that there is no medication for my condition. I tried to do this, and I asked about some creams or about some meds I don’t know… because massage seems to me very strange and insecure but I couldn’t find any good information for me and at the end I decided to try it out.
So after 6 months full of massages and exercises I’m now here still suffering of “pillar pain”. As you can understand I was right about the strange sensation that I got when my doc told me about the massage and no medications.. and I can openly assume that I was right… nothing helped and if talking seriously it became even worse than in the past. Obviously after 6 months and no progress at all I decided to speak with him and he suddenly realized that this pain could be a permanent one, in fact after he examined more and after a week he decided to give me a partial disability rating due to this pain. Talking seriously I was a little bit surprised , I expected that some bad things could happen to me but I didn’t expected to have such a conclusion to all this situation. If the facts about this pain are true then I would like to know what do makes pillar pain to be permanent? Is there something that I do wrong? I have tried to do everything what my doc told me to do. Some months after I got the conclusion and the disability I continued to search more about my situation and at the end I found out that there is a thing that could help me. This was the steroid injection and with a little bit more research and spent time I found it and I got it. I don’t know what is the connection between these two but I can clearly say that it helped me for the first 3-4 times when I used it. I generally know that this is not good for the health and I know for sure that someone here can judge me so bad … but actually I don’t care about it, I want so bad to eliminate this pain that I’m ready to do everything for this. You can’t even imagine what kind of feeling is that. Splints helped to, and for a few weeks I felt myself better but I wasn’t able to do anything with my hands due to the trauma. So after I elevated my pain I understood that yes, maybe someday I would be able to eliminate the pain, but my hands will rest like this forever. This is a tragic thing because I can’t do a lot o things that I really love such as sport. Before this situation and when I was healthy and without problems I practiced a lot of sports and all of them require your hands which I haven’t been able to use.
I tried to do a lot of things, even to do some stretching because I have read in one forum that it helped some people to feel better. I can’t say that this is useless because for short periods it eliminated the pain. At the end of all this story, and I mean today I can clearly say that I feel so sick about all these strange types of non-surgery methods that are made in order to help but in reality do nothing for you. I would opt to do another surgery if I know that this can help me. You do this one time but you have no problems for your entire life anymore. as I said, I’m about to do almost anything just to get rid of this horrible pain.
I still don’t know all the details about the pillar pain, because most of things that I know it are because of my doctor. I tried to find more on internet … of course you can find some info there but they don’t talk about details and things that could be really helpful for patients. I couldn’t find info about the duration or about what cause this pain and that’s why I’m here. I would like to find out if there is somebody that experienced the same thing and maybe somebody knows more that I don’t know and can help by sharing that info. I will be really grateful for your help because you’re my last chance to find more about the syndrome, more about the pain and just your site can really help me to believe that I have some chances to recover completely. thanks a lot and waiting for your answers.