Hello everyone, I am going to start directly with the problem. I have been using 15 of Prednisolone for the Polymyalgia Rheumatica condition for nearly one year now, however for the period of the last 3 months now I have been weaned myself down taking 2.5 mg of it per day. now what’s the thing… exactly 5 days ago I have totally stopped from using them and the problem appeared yesterday when my joint pain has started to return with a vengeance… I really do not like this thing… so far it is not as bad as it has been used to be in the past before I have started to take them, however it is currently going into that way and I can feel that it does because it gets worse and worse and I am now afraid that I am going to reach back the point when I am not able to get up from the toilet… If I would ever reach this point again I would know that I am going to be exactly where I have started with it.
Currently, my rheumatologist has told me that it may take a little while for my body to (finally, maybe one day) start making of its own that chemical that the steroids have been giving me and supplementing my body with. this is the only thought that keeps me away from taking them again and from making me think that it was all useless and that’s why I really hope that I am going to see an improvement anytime soon. I need to tell you that I am really determined to finally get off of them in case it is going to be possible, however I think that it may be the fact that I need to be on a very small amount for some other period of time, for a long period of time… I mean, this is just what came into my mind and nothing more. But anyway it is still based on what I have read on what I have heard…
I mean… I have heard of some people being on them for their entire life? is this true or only rumors? I am now trying to weight up what it is worse in my life… to continue using steroids more (and possibly for my entire life) or to live a restricted life… a life in pains. So that’s basically why I am here. I want to get a little bit of your help, a little bit of your knowledge and experience. somebody ever got off steroids? Did your body got used to it and then started to make the substance needed by its own? Or it has been required to take steroids for your entire life? is there somebody who have had some withdrawals by stopping taking this drug? generally, I would appreciate any experience regarding this drug… anything can be helpful, so please… I will be waiting for you responses. Best regards!